The role of the psychologist in dealing with people with a rare diagnosis. A theoretical review from health psychology
DOI:
https://doi.org/10.46553/RPSI.17.34.2021.p35-46Keywords:
rare diseases, genetic counseling, health psychology.Abstract
Genetic counseling is a complex process when working with rare diseases. It requires the accompaniment of different health professionals trained in the subject. Most published articles agree that psychologists should work from a psychoeducational model that offers information and support, being able to clearly transfer the knowledge that genetics and genomics offer to promote the health and well-being of those people diagnosed with a rare disease and their families. The aim of this review is to clarify on the approach that psychologists take regarding the complexity of having a rare diagnosis.
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